FASD Ireland: Parents & Carers Survey
Foetal Alcohol Spectrum Disorder (FASD) is the most prevalent neurodevelopmental condition in Ireland. Despite this, the Irish Government and arms of the State do not recognise FASD as a disability, nor do they have any standard criteria for diagnosis or framework of support. Despite acknowledging the very significant prevalence of the condition, the Health Service Executive (HSE) doesn’t acknowledge the need for specific tailored supports for people living with FASD and their families/caregivers. This is where FASD Ireland entered the stage.
FASD Ireland was established on International FASD Awareness Day, 9 September 2021 with a mission to provide education, awareness and support that will in turn work to reduce the prevalence of the condition into the future.
We work to highlight a greater awareness of FASD in society. The HSE estimates that up to 7.4% of the population are living with FASD and has recently published that 1 in 10 babies are born with a form of FASD in Ireland. As it stands there is no standard diagnostic criteria, no diagnostic pathway, and no State support or recognition for people living with FASD.
FASD Ireland provides education about FASD and advises on how we can all work together to create a society where people with FASD are supported and accommodated as needed. Around 125,000 members of the Irish workforce are living with FASD, whether they know it or not, So, it is vitally important that people with FASD and other non-visible disabilities are supported at work as required.
We are looking to hear from Parents & Carers who to help us develop our Peer Support!
This brief online survey is now live and we would appreciate people taking a few minutes to complete it. The responses received will help shape the future services that we offer. This is your opportunity to influence the direction of a service designed for you and the community around you.
Please complete the survey here: https://forms.gle/xmu1VZZ6jn3bsm3PA
Your feedback will help us better understand what’s working, what’s missing, and how we can evolve our offerings to better meet your needs.
More information on Foetal Alcohol Spectrum Disorder (FASD) is available from FASD Ireland – www.fasdireland.ie
FASD Hub Ireland and FASD Hub Northern Ireland which is a free and confidential support service providing signposting and advice for Foetal Alcohol Spectrum Disorder (FASD). There is no requirement to have a firm diagnosis of FASD to access this service.
Monday to Friday - 10am to 4pm by calling:
Ireland: 065 670 3098
Northern Ireland: 02895 682 553