DEBRA Ireland: Patient Care Administrator

DEBRA Ireland

Patient Care Administrator

Start December 2020

DEBRA Ireland is an ambitious patient led charity with a powerful case for support. We are very clear about where we need to be within the next five years and are passionate about achievement and excellence.

DEBRA Ireland is the national charity established in 1988 to provide patient support services and to drive research into treatments and cures for those living with the genetic skin condition, Epidermolysis Bullosa (EB). Patients who have EB, have skin that is as delicate and fragile as the wings of a butterfly, and just as easily damaged. The condition is extremely painful and leads to disability and deformity. Many of our patients who survive childhood face the frightening reality that they could develop a very aggressive form of skin cancer, due to the constant breakdown of their skin.

We are currently looking for a Patient Care Administrator. This role is central to supporting those affected by Epidermolysis Bullosa and their families. Candidates who have previous experience in a similar role and knowledge of the charitable sector are an advantage.

Applicant will need to be a team player, a self-starter, have strong communications skills (verbal & written), strong administration skills. Relevant experience in a Social Care setting would be an advantage.

Suitable candidate will be Garda Vetted.

Salary: DOE

Hours of Work: The post is for 25.5 hours per week. There will be a requirement for occasional “out of hours” work.

Reporting to: Head of Family Support Service

To Apply: Please email your CV and cover letter to

For more information about DEBRA Ireland, visit

Closing date: 9 November 2020

Location: The post is based in the DEBRA Ireland office at Butterfly Cottage, 8 Clanwilliam Terrace, Grand Canal Dock, Dublin 2 with the possibility of working remotely where practicable.

Travel: There may be an occasional need to travel to families living with EB around Ireland as part of the role.

Patient Care Administrator

The post of Patient Care Administrator will become an integral part of the family support team, helping to provide support to families living with EB.

Role & Duties

Will include (but not limited) to the following:

  • To be a voice for and a support person to those affected by EB
  • To support the Family Support Team (FST) in providing essential support to families living with EB
  • To build a relationship with families living with EB and occasionally visit them in their home if needed
  • To help facilitate peer support groups
  • To facilitate families accessing respite when needed
  • Inform service users of their entitlements
  • To assist families living with EB in accessing services within the community
  • To manage internal data base making sure it’s up to date with all relevant data
  • To manage all correspondence both electronically and by post to families, on behalf of Family Support Team
  • Dispatch mass email/text communications to service users
  • To provide content for Blogs and Social Media in consultation with FST
  • To provide information and content support the fundraising department, in consultation with FST
  • Process all wellbeing grants to families
  • To work with other staff in applying for grants if needed
  • Support family support team staff with event/campaigns throughout the year
  • Attend all family events as required
  • To undertake any other duties that may reasonably be required to fulfil the duties of this post.

All our staff will always act in accordance with the DEBRA Ireland Code of Professional conduct and within the Children’s first Guidelines.

Person Specification

Essential skills and experience:

  • Experience of working in an administrative support role.
  • Strong interpersonal skills and the ability to engage users, carers and staff in other agencies.
  • A self-starter who can embrace both working on their own initiative and as a team player.
  • Conscientious with exceptional attention to detail.
  • Administrative skills with strong computer skills.
  • Must have a clean full driving licence.

Desirable skills and experience:

  • Database experience training would be an advantage but training will be provided of our internal system.
  • Experience or knowledge of working with people with a physical disability.
  • Experience of working in the charity sector.
  • Most of all, passionate about fighting EB!

General Info

Date Entered/Updated
13th Oct, 2020
Dublin 2 / Remotely
Expiry Date
9th Nov, 2020