Research Project: Young people with disabilities - decision making
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Young people with disabilities are invited to answer questions for a research project about decision making
What is it about?
This research wants to learn about decision making and young people with disabilities in Ireland. It wants to hear about young people with disabilities experience of decision making and if young people with disabilities use support to make decisions. These could be decisions about school, work, money, health and medical treatment, hobbies or socialising. The term support comes from Article 12 of the UNCRPD. It can cover lots of different things that help someone make a decision and everyone’s idea of support can be different. For example, support could be talking to a friend or parent about something, getting information in an accessible way or taking more time to think and ask questions.
Who can take part?
People with disabilities aged between 15 and 20 years of age can take part. The project is looking for young people with all kinds of disabilities and experiences. This includes experience of
- physical disability (wheelchair user, limited mobility or people whose arms or legs don’t work in the same way as other people)
- sensory disability including blind, low vision, deaf or hard of hearing
- intellectual disability,
- learning disability (dyslexia, dyscalculia etc.),
- Neurodiversity (Autism, DCD/Dyspraxia, ADD, ADHD),
- psycho-social disability or experience of the mental health services.
Who is working on this?
This project is based at the Centre for Disability Law and Policy in NUI Galway. Clíona de Bhailís is the lead researcher on this project. She is doing this research as part of her PhD. Her PhD supervisor is Professor Eilionóir Flynn. Before starting on her PhD, Clíona was a Research Assistant on the VOICES project. The VOICES project looked at adults with disabilities experiences of being denied the right to make decisions or using support to make decisions. It had participants from over 11 countries and 5 continents.
What will people taking part have to do?
People taking part in this research will have to answer questions about a good experience of decision making or a time they felt listened to, a bad experience or a time they were not listened to or supported and what helps them make decisions. These questions will be on a form that Clíona will send to you by email. Clíona can also help you fill in the form.
How can I find out more?
If you have any questions or you would like to take part, you should contact Clíona at email@example.com or 086-6032755 (call and text).
More information is also available on https://itsmyliferesearch.com/